Reflecting on my experiences as a patient advocate and a physician, I’ve seen both the strengths and the shortcomings of participatory medicine in action. Each patient’s journey has been unique, with moments of progress and empowerment, but also instances of struggle, especially when navigating issues like privacy, confidentiality, and security. The Good One of the most rewarding aspects of participatory medicine is seeing patients and their families become actively involved in care. For example, in the case of the 65-year-old man with chronic vomiting, there was a clear effort to include the patient in discussions about his symptoms and potential diagnoses. This active participation helped foster trust and engagement, even though the diagnostic journey was long. In chronic conditions like HFpEF and CKD, I’ve seen how educating patients about their disease helps them feel more in control. It’s encouraging to witness patients taking ownership of their health by asking questions and...
In Healthcare, where every decision impact lives, it’s critical to ensure tools we create are truly serving the people who use them- patients, providers and staff-alike. Why is end-user driven technology critical in healthcare? • Traditional healthcare tools were developed in silos. • Now, tools are co-designed with patients, clinicians, and administrators. EVOLUTION OF HEALTHCARE TECHNOLOGY • Early Stages: Electronic Medical Records (EMRs) for basic documentation. • Advancements: AI, IoT, and telemedicine revolutionizing healthcare. • Current State: User-centric designs addressing specific needs. Principles of a User-Driven Ecosystem 1. User-Centric Design: Tools that integrate seamlessly into workflows. 2. Iterative Development: Refining tools through constant user feedback. 3. Data Accessibility: Clear, actionable data for better decision-making. 4. Interoperability: Connecting devices, apps, and records efficiently. Role of Technology for Key Users • Patients: Wearables ...